Wednesday, December 21, 2011

My new Ornament for 2011

I picked my Ornament for 2011 "Hello Kitty", she's my favorite

A Serious Conversation with Santa

Deep Conversation with Santa;
Conversation went something like this. . .
Santa . .  I have tried very hard this year, I have been naughty a few times
but I told mom I was sorry;  Mommy says I need to make better choices;  I know I need
to listen to mommy better.  Santa says, "Kearstyn, I know you are trying
and that is all Mommy and Grandma and I want from you.  You are very smart and
we have faith in you.  Now because I know you are a good little girl what would you like
for me to bring you for Christmas...  Well Santa,I would really like a Lolly Lopsy Doll, and a basketball and
Nintendo Ds games.  I really like Hello Kitty too...  Kearstyn says, Thank you Santa
for my Bike and my scooter last year.

Christmas Snow, Very Cold

Merry Christmas from Texas

Thursday, December 1, 2011

Friday, October 21, 2011

Amazing Hemi Child * * * hemichildkearstyn.blogspot.com: FUNDRAISING ACTIVITY

Amazing Hemi Child * * * hemichildkearstyn.blogspot.com: FUNDRAISING ACTIVITY: http://www.fasttrackfundraising.com/ Fundraising is currently being raised; Amazing enough, participation is spreading fairly quickly. It just takes people talking, caring and participating to affect change. Thank you to everyone who has contacted us with wanting to help. You are all amazing. Special Thank you to BAILEY, you are a sweetheart. ...

Amazing Hemi Child * * * hemichildkearstyn.blogspot.com: 1rst Quarter Report Card 2011

Amazing Hemi Child * * * hemichildkearstyn.blogspot.com: 1rst Quarter Report Card 2011: YEAH!! Kearstyn, you got 2 (A's) and 1 (B); Good Job!!!!

1rst Quarter Report Card 2011


YEAH!! Kearstyn, you got 2 (A's) and 1 (B);  Good Job!!!!

Monday, September 26, 2011

GLOSSARY: HELPFUL TERMS

Common Cerebral Palsy Terms

This glossary should help provide answers to your basic questions about cerebral palsy. It can’t answer every question. Contact us if you have more questions about your child’s cerebral palsy, or if you would like to learn more about protecting your child’s right to Benefits4Life.

A-C | D-F | G-L | M-R | S-Z
ABO blood type incompatibility
ABO Blood Type Incompatibility results when the blood type of the fetus, or developing child, differs from the blood type of the mother. This can occur if (1) the mother is type O and the fetus is either B, A, or AB, (2) the mother is A and the fetus is B or AB, or (3) the mother is B and the fetus is A or AB.
adaptive equipment
Special equipment designed to aid individuals with disabilities in accomplishing tasks. Examples include wheelchairs, walkers, communication aids, and specialized tools
apgar score
A numbered score doctors use to assess a baby’s physical state at the time of birth.
applied or assistive technology
Any item, device, software, or piece of equipment which is used to maintain or improve the functional capabilities of individuals with disabilities. Examples range from grab bars in accessible bathroom stalls to specialized screen reading software for individuals with visual impairments.
apraxia
Impaired ability to carry out purposeful movements in an individual who does not have significant motor problems.
asphyxia
Lack of oxygen due to trouble with breathing or poor oxygen supply in the air.
bile pigments
Yellow-colored substances produced by the human body as a by-product of digestion.
ataxic cerebral palsy
Cerebral palsy characterized by low muscle tone and poor coordination.
athetoid cerebral palsy
Cerebral palsy caused by damage to the cerebellum or basal ganglia which may cause involuntary movements in the face, arms, and trunk of individuals affected by this type of Cerebral palsy.
caesarean section
The surgical removal of a child from it’s mother’s womb by opening the abdominal and uterine walls.
central nervous system
The human body system consisting of the spinal chord and the brain which sends signal throughout the body to direct movement and organ function.
cerebral
Relating to the two hemispheres of the human brain.
clonus
An abnormality in neuromuscular activity characterized by rapidly alternating muscular contraction and relaxation.
computed tomography (CT)
An imaging technique that uses X rays and a computer to create a picture of the brain’s tissues and structures.
congenital
Present at birth.
contracture
A condition in which muscles become fixed in a rigid, abnormal position causing distortion or deformity.
A-C | D-F | G-L | M-R | S-Z
developmental malformations
Occasionally, something may disrupt the brain’s development process. A brain in utero may fail to develop the usual number of brain cells, communication between cells may be impaired, or brain cells may not migrate to the areas they are supposed to. Causes of these malformations can include genetic disorders, chromosome abnormalities with either too much or too little genetic material, or faulty blood supply to the brain. Developmental brain malformations in the areas of the brain which control voluntary movement may cause cerebral palsy.
developmental milestones
The averages ages at which children develop certain skills or abilities. Tracking these milestones enables you to observe any problems in your child’s development.
down syndrome
A chromosomal abnormality caused by an accident in cell development which creates 47 instead of the normal 46 chromosomes which alters the normal development of the body and brain.
dysarthria
Problems with speaking caused by difficulty moving or coordinating the muscles needed for speech.
electroencephalogram (EEG)
A technique for recording the pattern of electrical currents inside the brain.
electromyography
A special recording technique that detects muscle activity.
epilepsy
A symptom of brain dysfunction characterized by periodic, recurrent seizures.
erb’s palsy
A form a paralysis caused by traumatic injury to the upper brachial plexus. This occurs most commonly during childbirth due to forcible traction during delivery. Indicators of Erb’s palsy include loss of sensation in the arm and paralysis and atrophy of the muscles in the arm. Usually only effects one side of the body.
failure to thrive
A condition characterized by lag in physical growth and development.
fetal distress
Also called “Hypoxia”, the term indicates a situation when your baby cannot breathe.
forceps
Tools used to grip a baby’s head and guide it out of the birth canal.
A-C | D-F | G-L | M-R | S-Z
gait analysis
A technique that uses camera recording, force plates, electromyography, and computer analysis to objectively measure an individual’s pattern of walking.
gastrostomy
A surgical procedure to create an artificial opening in the stomach.
hemianopia
Defective vision or blindness that impairs half of the normal field of vision.
hemiparetic tremors
Uncontrollable shaking affecting the limbs on the spastic side of the body in those who have spastic hemiplegia.
hypertonia
Increased tone.
hypotonia
Decreased tone.
hypoxic-ischemic encephalopathy
Brain damage caused by poor blood flow or insufficient oxygen supply to the brain.
intraventricular hemorrhage
Bleeding into the fluid spaces (or “ventricles”) within the brain or bleeding in areas near the ventricles.
involuntary movement
Movement not under conscious control of the brain. Your heart beat is an involuntary movement. When involuntary movements affect normally controlled parts of the body, such as limbs or mouths, these can be seriously detrimental to your ability to function normally.
jaundice
A blood disorder caused by the abnormal buildup of bile pigments in the bloodstream.
little’s disease
The original name for Cerebral palsy, as defined by English surgeon William John Little in 1843.
A-C | D-F | G-L | M-R | S-Z
magnetic resonance imaging (MRI)
an imaging technique which uses radio waves, magnetic fields, and computer analysis to create a picture of body tissues and structures.
meningitis
An infection of the fluid of a person’s spinal cord and the fluid which surrounds the brain.
mixed cerebral palsy
A form of cerebral palsy which includes affects of both spastic cerebral palsy and athetoid cerebral palsy.
motor function
The parts of the human body which enable people to move. Fine motor skills includes the use of small muscles, such as hands; gross motor skills represents the larger muscles, such as legs and arms.
neonatal hemorrhage
Bleeding of brain blood vessels in the newborn.
orthotic devices
Special devices, such as splints or braces, used to treat problems of the muscles, ligaments, or bones of the skeletal system.
paresis or plegia
Weakness or paralysis. In cerebral palsy, these terms are typically combined with another phrase that describes the distribution of paralysis and weakness, e.g., paraparesis.
palsy
Paralysisor problems in the control of voluntary movement.
reflexes
Movements that the body makes automatically in response to a specific cue.
Rh incompatibility
A blood condition in which antibodies in a pregnant woman’s blood can attack fetal blood cells, impairing the fetus’s supply of oxygen and nutrients.
rubella
Also known as German measles, rubella is a viral infection that can damage the nervous system in the developing fetus.
A-C | D-F | G-L | M-R | S-Z
selective dorsal root rhizotomy
A surgical procedure in which selected nerves are severed to reduce spasticity in the legs.
spastic cerebral palsy
The most common form of Cerebral palsy, it causes affected children to have stiff and jerky movements.
spastic diplegia
A form of cerebral palsy in which both arms and both legs are affected, the legs being more severely affected.
spastic hemiplegia (or hemiparesis)
A form of cerebral palsy in which spasticity affects the arm and leg on one side of the body.
spastic paraplegia (or paraparesis)
A form of cerebral palsy in which spasticity affects both legs but the arms are relatively or completely spared.
spastic quadriplegia (or quadriparesis)
A form of cerebral palsy in which all four limbs are affected equally.
stereognosia
Difficulty perceiving and identifying objects using the sense of touch.
strabismus
Misalignment of the eyes.
ultrasonography
A technique that bounces sound waves off of tissues and structures and uses the pattern of echoes to form an image, called a sonogram.
A-C | D-F | G-L | M-R | S-Z
Contact us if you have questions about your child’s cerebral palsy, or if you would like to learn more about protecting your child’s right to Benefits4Life.

1-800-4MyChild (1-800-469-2445)
1-888-4MYCHILD

Sunday, September 25, 2011

Link between gifted children and lack of self esteem

Related citations

Hemiplegia according to the Encyclopedia

Hemiplegia

From Wikipedia, the free encyclopedia
Jump to: navigation, search
The exact cause of hemiplegia is not known in all cases, but it appears that the brain is deprived of oxygen and this results in the death of neurons. When the corticospinal tract is damaged, the injury is usually manifested on the opposite side of the body. For example if one has an injury to the right side of the brain, the hemiplegia will be on the left side of the body.

Hemiplegia means severe weakness of the limbs on one side of the body but the specific features can vary tremendously from person to person. Problems may include:
  • Difficulty with gait
  • Difficulty with balance while standing or walking
  • Having difficulty with motor activities like holding, grasping or pinching
  • Increasing stiffness of muscles
  • Muscle spasms
  • Difficulty with speech
  • Difficulty swallowing food
  • Significant delay in achieving developmental milestones like standing, smiling, crawling or speaking
  • The majority of children who develop hemiplegia also have abnormal mental development
  • Behavior problems like anxiety, anger, irritability, lack of concentration or comprehension
  • Emotions- depression
Rehabilitation is the main treatment of individuals with hemiplegia. In all cases, the major aim of rehabilitation is to regain maximum function and quality of life. Both physical and occupational therapy can significantly improve the quality of life. Physical therapy can help improve muscle strength, mobility such as standing and walking, and other physical function. Occupational therapy may help the individual train daily living activities like brushing teeth, combing hair or dressing. Initially, one may undergo physical therapy at a center but many of these exercises can also be done at home and become part of daily life routine.

Hemiplegia is not a progressive disorder, except in progressive conditions like a growing brain tumour. Once the injury has occurred, the symptoms should not worsen.

Sudden recovery from hemiplegia is very rare. Many of the individuals will have limited recovery, but the majority will improve from intensive, specialised rehabilitation. Potential to progress may differ in cerebral palsy, compared to adult acquired brain injury. It is vital to integrate the hemiplegic child into society and encourage them in their daily living activities. With time, some individuals may make remarkable progress.

*** Which is why supporting Kearstyn in her effort to bring awareness to the community is a great society encouraging activity, which can benefit many with positive outcomes;  community involvement, education awareness, research and prevention.  AND FUN!!!

External links

Thursday, September 22, 2011

I'm So Happy

Hello People;
I am so happy, I asked mommy to help me send a letter to Ellen.  I watch her on TV alot.  She is so funny,
she makes me laugh.  I dance when she dances.  She makes me laugh so much.  I send letter to her to help me to make money to help chasa.org.  I told mommy, do you think she will write me back?  Mommy says, I
do not see why not, if you are sincere and I want to help other kids like me, she would be crazy not to hear me.  Mommy says she is proud of me for wanting to do something to help other kids.  Doing nice things for others is a good thing.  I am going to hand write a list of ideas to earn money for research and education for pediatric stroke (chasa.org).  I want kids at school to learn more about kids with stroke.  Us Hemi kids are not weird, we are good kids we just need med's.  I play the same as they do.  I like Nintendo like other kids.  I ride my bike, I play with bubbles.  I jump rope.  I chase my cat.  I am a good kid.  I just have a hard time with learning, writing, remembering stuff.  I just need more help with stuff.  I am going to go right now
before it gets dark and go outside and play.  Bye Bye  

Sunday, September 18, 2011

Helpful Document regarding Toe Walking

 

I came across this interested document from J Romkes regarding Toe Walking; This answered alot of my questions that Kearstyn has experienced;

Source

Laboratory for Gait Analysis Basel, University Children's Hospital (UKBB), Burgfelderstrasse 101, CH-4012 Basel, Switzerland. J.Romkes@unibas.ch

Abstract

This study compares lower extremity muscle activation during gait in patients with hemiplegic cerebral palsy (CP) with healthy subjects mimicking the patients. The purpose was to understand the differences between obligatory toe-walking as observed in hemiplegic CP gait and voluntary toe-walking. The results contribute to a better understanding by distinguishing between primary deviations in muscle activity as a direct consequence of the underlying neurological pathology of hemiplegic CP and secondary, compensatory deviations due to the biomechanics of toe-walking. Surface electromyographic (EMG), kinematic and kinetic data were compared between a group of 12 hemiplegic CP patients and a group of 10 healthy subjects walking normally and when mimicking hemiplegic gait. Integrated 3D gait analysis was performed with simultaneous EMG recordings of the medial gastrocnemius, tibialis anterior, rectus femoris, and semitendinosus muscles bilaterally. The EMG pattern of the toe-walking leg in the mimicking subjects was modified in gastrocnemius and tibialis anterior as compared with normal gait. This modified muscle activation pattern showed strong similarities to that of the patients and therefore can be regarded, at least in part, as activity required for toe-walking. A possible primary gait abnormality was observed in the rectus femoris where the patients showed a burst of EMG activity in mid-swing phase in contrast to the mimicking subjects who showed normal EMG during this phase.
PMID:
17275305
[PubMed - indexed for MEDLINE]

Thursday, September 15, 2011

I took a Language test today, there were 5 questions and I got 100%.  Mommy was so happy for me!!!


Katie in my class graded my paper, I am so happy I got 100% 






Monday, September 12, 2011

I'm home from School

Today was very busy at school.  But yeah no homework.  Mom says I can work on my Blog for a little
while, but not very long since I am really tired.  I ate cheese nachos for lunch today and white milk.  My friends at school are, J. J and Devony, Anna, they are nice to me, we play together at recess.  We talk about girl toys like Barbies, Littlest Pet Shops and Hello Kitty.  We talk about my kitty, I tell them she is a pain in the butt and likes to run and chase me.  Her name is Tinkerbell, I sometimes call her Tinky, or Bubba's, or Ms Baby.  I like to play ball outside, I play kick ball with my friends, I kick it hard.  We also like to swing together.  Anna says she likes being my friend.  The nurse came to class and gave me my meds today, like she does everyday at school.  Well I got to go, I want to watch Nick Jr. until dinner time, then I eat, then I take a shower and brush my teeth, put my jammies on and its bedtime.  Maybe I can talk more tomorrow.  See ya :)

Cerebral Palsy and Other Helpful Info Links

Links By Subject

Adaptive Therapy Equipment
Abilitations specialized therapy tools/toys and adaptive equipment http://www.abilitations.com/

Enablemart carries the latest assistive technology products and software http://www.enablemart.com/

ADDitude Magazine Understanding the Symptoms, Diagnosis & Treatment http://www.additudemag.com/

Ages and Stages Questionnaire
The Ages and Stages Questionnaires® (ASQ) Third Edition is a questionnaire designed to help parents check their child's development. Parents can use the results of the ASQ to help talk with pediatricians, teachers or other professionals if they have concerns about their child's development. https://asqoregon.com/index.php?lang=en

CDC Online source for credible information http://www.cdc.gov/ncbddd/actearly/index.html

CDC Take the developmental milestones quiz quiz

CDC Has information for doctors, healthcare providers, families. Look over the facts for any concerns you may have facts


National Center for Learning Disabilities provides essential information to parents, professionals and individuals with learning disabilities, promotes research and programs to foster effective learning and advocates for policies to protect and strengthen educational rights and opportunities http://www.ncld.org/ 
Karen Gaffney Foundation dedicated to championing the journey to full inclusion in families, schools, communities and the workplace for people with Down syndrome or other developmental disabilities http://www.karengaffneyfoundation.com/Bridgeway House is an organization helping children and families by providing treatments, courses, and support to families and individuals affected by autism and related disabilities http://www.bridgewayhouse.org/

Foley Vision Center Vision Therapy and Pediatric Eye Doctors http://www.foleyvisioncenter.com/

Lifetime Eye Care Vision Therapy and Pediatric Eye Doctors http://www.lifetimeeyecare.net/
Family Programs & Services

Foundation of Dentistry for the Handicapped donated dental services http://www.nfdh.org/ Special Solutions future care planning for families with special needs children http://www.specialsolutions.org/

Disability Compass provides information on services, products, and special health care resources http://www.disabilitycompass.com/

Lose the Training Wheels is a program that uses unique adapted bikes allowing children to Lose the Training Wheels™ and ride conventional bicycles www.losetrainingwheelspdx.blogspot.com/

Family Support/Consultation
Barbara Avila Consulting- RDI services, Autism and Social Behavioral supports http://www.barbaraavilaconsulting.com/

Diane Frost Wiscarson, P.C. - Legal support for families of children with special needs http://www.wiscarsonlaw.com/

Lana L. Traynor, LLC - Compassionate counsel to families and people with special needs http://www.traynorlawfirm.com/

Occupational Therapy Resources
Handwriting Without Tears® The goal of HWT is to make legible and fluent handwriting an easy and automatic skill for all students http://www.hwtears.com/

Vital Links (Therapeutic Listening®) is an evidence-backed protocol that combines a sound-based intervention with sensory integrative activities to create a comprehensive program that is effective for diverse populations with sensory challenges http://www.vitallinks.net/


Physical Therapy Resources
Hemi-Kids is an email support group where parents of children who have hemiplegia or hemiplegic cerebral palsy share support and information http://www.hemikids.org/

Wheelchair Works provides specialty rehabilitation equipment esp. wheelchairs http://www.wheelchairsworks.com/

United Seating & Mobility provides seating and mobility solutions for people with disabilities http://www.unitedseating.com/

Rifton Adaptive rehab equipment for children with differing abilities http://www.rifton.com/

Sammons Preston Rehabilitation equipment and supplies http://www.sammonspreston.com/

A Step Forward Scoliosis bracing, lower extremity orthotics and foot orthotics http://www.astepforwardpdx.com/

Social Skills Resources
Michelle Garcia Winner, SLP, CCC specializes in developing further understanding and educational strategies for helping persons with social thinking/social communicative challenges http://www.socialthinking.com/

All Kinds of Minds non-profit Institute helps students who struggle with learning measurably improve their success in school and life by providing programs that integrate educational, scientific, and clinical expertise http://www.allkindsofminds.org/

Speech Therapy Resources
Talk Tools products designed to encourage clients to explore shape and texture, increase sensory awareness, and build muscle tone/strength in the jaw, lips, checks, and tongue http://www.talktools.net/

Speech Language Pathology Web sites provide pointers to finding information in the field of Speech Language Pathology http://www.herring.org/

ASHA (American Speech-Language-Hearing Association) is the professional, scientific, and credentialing association for more than 127,000 members and affiliates who are audiologists, speech-language pathologists, and speech, language, and hearing scientists http://www.asha.org/

Visual Supports
Mayer-Johnson enhances learning and human expression for individuals with special needs through symbol-based products, training and services http://www.mayer-johnson.com/

Sandbox Learning can provide children with customized tools that connect them to their goals, their community, and the world around them http://www.sandbox-learning.com/

Do2Learn provides tools and solutions based on scientific research and clinical experience to help those with special learning and treatment needs http://www.do2learn.com/
Cerebral Palsy
United Cerebral Palsy (UCP) is the leading source of information on cerebral palsy and is a pivotal advocate for the rights of persons with any disability http://www.ucp.org/

Hemi-Kids is an email support group where parents of children who have hemiplegia or hemiplegic cerebral palsy share support and information http://www.hemikids.org/

PART III THE TRUE LOVE STORY

Mom met with the Neurologist and he told mom more information and expectations.  He told mom that I was improving miracously.  He said "I am not sure what you're doing or what you're telling her, but keep doing it, it appears to be working"... Mom thanked God for his love and mercy and could not wait to get back to me and spend me time with me.  The same day before mom was ready to go home for the night the nurse came by.  Mom says she sat next to mom and gave her words of incouragement and talked to mom about faith and hope.  Mom says the nurse told her that all the Dr.'s and Nurses all say that I am so beautiful and will grow up to be an Amazing Child.  The nurse said, "She is a Strong one".  I am and I come by it naturally is what Grandma says, all the time.  The next day when mom came for her visit, there was more improvement.  The Dr. came to see mommy and he told mommy that I continue to improve and this night under very close supervision and monitoring they were going to see how I would do with out the Oxygen line.  The Dr. told mommy that if I could breath on my own without it through the night and the next day until mommy came to visit with good results, I might get to go home.  Mommy says she cried with excitement.  ***Got to go for right now, will write more soon***

Sunday, September 11, 2011

More Helpful Links of Information & Families in TX

NEW Kids Have Strokes Blog kidshavestroke.org
http://www.CHASA.org
http://www.cerebralpalsy.org/


4MyChild - 1-800-4MYCHILDhttp://www.specialtravelers.org/location.htm

www.tea.state.tx.us/special.ed
E-mail: kclayton@tmail.tea.state.tx.us
STATE VOCATIONAL REHABILITATION AGENCY: E-mail: max.arrell.rehab@rehab.state.tx.us

STATE DEVELOPMENTAL DISABILITIES PLANNING COUNCIL
Roger A. Webb, Executive Director
Texas Planning Council for DD
E-mail: TXDDC@rehab.state.tx.us

STATE EDUCATION AGENCY RURAL REPRESENTATIVE
Gene Lenz, Senior Director
Special Education
Texas Education Agency
E-mail: sped@tea.tetn.net
Web: www.tea.state.tx.us/special.ed

Cerebral Palsy
Bill Knudsen, President & Chief Executive Officer
United Cerebral Palsy of Texas
7301 Burnet Road, Suite 102-PMB 565
Austin, TX 78757
(512) 468-7645; (800) 999-1898
Email: billknudsen@ucptexas.com

Epilepsy
Donna Stahlhut, Executive Director
Epilepsy Foundation of Southeast Texas
2650 Fountain View, Suite 316
Houston, TX 77057
(713) 789-6295; (888) 548-9716 (in TX)
E-mail: dstahlhut@MSN.com
Web: http://www.efset.org/

Epilepsy Foundation of Greater North Texas
2906 Swiss Avenue
Dallas, TX 75204
(214) 823-8809; (800) 447-7778 (in TX only)
E-mail: info@efgnt.org
Web: http://www.efgnt.org/

Learning Disabilities
Ann Robinson, Coordinator
Learning Disabilities Association of TX
1011 West 3lst Street
Austin, TX 78705
(512) 458-8234; (800) 604-7500 (TX only)
E-mail: LDAT@compuserve.com

OTHER DISABILITY ORGANIZATIONS
Rebecca Rabinowitz, President
Easter Seals Greater Dallas, TX
4443 N. Josey Lane
Carrollton, TX 75010
(972) 394-8900; (800) 580-4718
E-mail: rebecca@easterseals.com
Web: http://www.easterseals.com/

Texas Advocates Supporting Kids with Disabilities (TASK)
P.O. Box 162685
Austin, TX 78716
(512) 310-2102 (V or Fax)
E-mail: ASKTASK@AOL.com

EXTREMELY HELPFUL ORGANIZATIONS AND SINCERELY WILLINGLY TO HELP