Monday, September 26, 2011


Common Cerebral Palsy Terms

This glossary should help provide answers to your basic questions about cerebral palsy. It can’t answer every question. Contact us if you have more questions about your child’s cerebral palsy, or if you would like to learn more about protecting your child’s right to Benefits4Life.

A-C | D-F | G-L | M-R | S-Z
ABO blood type incompatibility
ABO Blood Type Incompatibility results when the blood type of the fetus, or developing child, differs from the blood type of the mother. This can occur if (1) the mother is type O and the fetus is either B, A, or AB, (2) the mother is A and the fetus is B or AB, or (3) the mother is B and the fetus is A or AB.
adaptive equipment
Special equipment designed to aid individuals with disabilities in accomplishing tasks. Examples include wheelchairs, walkers, communication aids, and specialized tools
apgar score
A numbered score doctors use to assess a baby’s physical state at the time of birth.
applied or assistive technology
Any item, device, software, or piece of equipment which is used to maintain or improve the functional capabilities of individuals with disabilities. Examples range from grab bars in accessible bathroom stalls to specialized screen reading software for individuals with visual impairments.
Impaired ability to carry out purposeful movements in an individual who does not have significant motor problems.
Lack of oxygen due to trouble with breathing or poor oxygen supply in the air.
bile pigments
Yellow-colored substances produced by the human body as a by-product of digestion.
ataxic cerebral palsy
Cerebral palsy characterized by low muscle tone and poor coordination.
athetoid cerebral palsy
Cerebral palsy caused by damage to the cerebellum or basal ganglia which may cause involuntary movements in the face, arms, and trunk of individuals affected by this type of Cerebral palsy.
caesarean section
The surgical removal of a child from it’s mother’s womb by opening the abdominal and uterine walls.
central nervous system
The human body system consisting of the spinal chord and the brain which sends signal throughout the body to direct movement and organ function.
Relating to the two hemispheres of the human brain.
An abnormality in neuromuscular activity characterized by rapidly alternating muscular contraction and relaxation.
computed tomography (CT)
An imaging technique that uses X rays and a computer to create a picture of the brain’s tissues and structures.
Present at birth.
A condition in which muscles become fixed in a rigid, abnormal position causing distortion or deformity.
A-C | D-F | G-L | M-R | S-Z
developmental malformations
Occasionally, something may disrupt the brain’s development process. A brain in utero may fail to develop the usual number of brain cells, communication between cells may be impaired, or brain cells may not migrate to the areas they are supposed to. Causes of these malformations can include genetic disorders, chromosome abnormalities with either too much or too little genetic material, or faulty blood supply to the brain. Developmental brain malformations in the areas of the brain which control voluntary movement may cause cerebral palsy.
developmental milestones
The averages ages at which children develop certain skills or abilities. Tracking these milestones enables you to observe any problems in your child’s development.
down syndrome
A chromosomal abnormality caused by an accident in cell development which creates 47 instead of the normal 46 chromosomes which alters the normal development of the body and brain.
Problems with speaking caused by difficulty moving or coordinating the muscles needed for speech.
electroencephalogram (EEG)
A technique for recording the pattern of electrical currents inside the brain.
A special recording technique that detects muscle activity.
A symptom of brain dysfunction characterized by periodic, recurrent seizures.
erb’s palsy
A form a paralysis caused by traumatic injury to the upper brachial plexus. This occurs most commonly during childbirth due to forcible traction during delivery. Indicators of Erb’s palsy include loss of sensation in the arm and paralysis and atrophy of the muscles in the arm. Usually only effects one side of the body.
failure to thrive
A condition characterized by lag in physical growth and development.
fetal distress
Also called “Hypoxia”, the term indicates a situation when your baby cannot breathe.
Tools used to grip a baby’s head and guide it out of the birth canal.
A-C | D-F | G-L | M-R | S-Z
gait analysis
A technique that uses camera recording, force plates, electromyography, and computer analysis to objectively measure an individual’s pattern of walking.
A surgical procedure to create an artificial opening in the stomach.
Defective vision or blindness that impairs half of the normal field of vision.
hemiparetic tremors
Uncontrollable shaking affecting the limbs on the spastic side of the body in those who have spastic hemiplegia.
Increased tone.
Decreased tone.
hypoxic-ischemic encephalopathy
Brain damage caused by poor blood flow or insufficient oxygen supply to the brain.
intraventricular hemorrhage
Bleeding into the fluid spaces (or “ventricles”) within the brain or bleeding in areas near the ventricles.
involuntary movement
Movement not under conscious control of the brain. Your heart beat is an involuntary movement. When involuntary movements affect normally controlled parts of the body, such as limbs or mouths, these can be seriously detrimental to your ability to function normally.
A blood disorder caused by the abnormal buildup of bile pigments in the bloodstream.
little’s disease
The original name for Cerebral palsy, as defined by English surgeon William John Little in 1843.
A-C | D-F | G-L | M-R | S-Z
magnetic resonance imaging (MRI)
an imaging technique which uses radio waves, magnetic fields, and computer analysis to create a picture of body tissues and structures.
An infection of the fluid of a person’s spinal cord and the fluid which surrounds the brain.
mixed cerebral palsy
A form of cerebral palsy which includes affects of both spastic cerebral palsy and athetoid cerebral palsy.
motor function
The parts of the human body which enable people to move. Fine motor skills includes the use of small muscles, such as hands; gross motor skills represents the larger muscles, such as legs and arms.
neonatal hemorrhage
Bleeding of brain blood vessels in the newborn.
orthotic devices
Special devices, such as splints or braces, used to treat problems of the muscles, ligaments, or bones of the skeletal system.
paresis or plegia
Weakness or paralysis. In cerebral palsy, these terms are typically combined with another phrase that describes the distribution of paralysis and weakness, e.g., paraparesis.
Paralysisor problems in the control of voluntary movement.
Movements that the body makes automatically in response to a specific cue.
Rh incompatibility
A blood condition in which antibodies in a pregnant woman’s blood can attack fetal blood cells, impairing the fetus’s supply of oxygen and nutrients.
Also known as German measles, rubella is a viral infection that can damage the nervous system in the developing fetus.
A-C | D-F | G-L | M-R | S-Z
selective dorsal root rhizotomy
A surgical procedure in which selected nerves are severed to reduce spasticity in the legs.
spastic cerebral palsy
The most common form of Cerebral palsy, it causes affected children to have stiff and jerky movements.
spastic diplegia
A form of cerebral palsy in which both arms and both legs are affected, the legs being more severely affected.
spastic hemiplegia (or hemiparesis)
A form of cerebral palsy in which spasticity affects the arm and leg on one side of the body.
spastic paraplegia (or paraparesis)
A form of cerebral palsy in which spasticity affects both legs but the arms are relatively or completely spared.
spastic quadriplegia (or quadriparesis)
A form of cerebral palsy in which all four limbs are affected equally.
Difficulty perceiving and identifying objects using the sense of touch.
Misalignment of the eyes.
A technique that bounces sound waves off of tissues and structures and uses the pattern of echoes to form an image, called a sonogram.
A-C | D-F | G-L | M-R | S-Z
Contact us if you have questions about your child’s cerebral palsy, or if you would like to learn more about protecting your child’s right to Benefits4Life.

1-800-4MyChild (1-800-469-2445)

Sunday, September 25, 2011

Link between gifted children and lack of self esteem

Related citations

Hemiplegia according to the Encyclopedia


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The exact cause of hemiplegia is not known in all cases, but it appears that the brain is deprived of oxygen and this results in the death of neurons. When the corticospinal tract is damaged, the injury is usually manifested on the opposite side of the body. For example if one has an injury to the right side of the brain, the hemiplegia will be on the left side of the body.

Hemiplegia means severe weakness of the limbs on one side of the body but the specific features can vary tremendously from person to person. Problems may include:
  • Difficulty with gait
  • Difficulty with balance while standing or walking
  • Having difficulty with motor activities like holding, grasping or pinching
  • Increasing stiffness of muscles
  • Muscle spasms
  • Difficulty with speech
  • Difficulty swallowing food
  • Significant delay in achieving developmental milestones like standing, smiling, crawling or speaking
  • The majority of children who develop hemiplegia also have abnormal mental development
  • Behavior problems like anxiety, anger, irritability, lack of concentration or comprehension
  • Emotions- depression
Rehabilitation is the main treatment of individuals with hemiplegia. In all cases, the major aim of rehabilitation is to regain maximum function and quality of life. Both physical and occupational therapy can significantly improve the quality of life. Physical therapy can help improve muscle strength, mobility such as standing and walking, and other physical function. Occupational therapy may help the individual train daily living activities like brushing teeth, combing hair or dressing. Initially, one may undergo physical therapy at a center but many of these exercises can also be done at home and become part of daily life routine.

Hemiplegia is not a progressive disorder, except in progressive conditions like a growing brain tumour. Once the injury has occurred, the symptoms should not worsen.

Sudden recovery from hemiplegia is very rare. Many of the individuals will have limited recovery, but the majority will improve from intensive, specialised rehabilitation. Potential to progress may differ in cerebral palsy, compared to adult acquired brain injury. It is vital to integrate the hemiplegic child into society and encourage them in their daily living activities. With time, some individuals may make remarkable progress.

*** Which is why supporting Kearstyn in her effort to bring awareness to the community is a great society encouraging activity, which can benefit many with positive outcomes;  community involvement, education awareness, research and prevention.  AND FUN!!!

External links

Thursday, September 22, 2011

I'm So Happy

Hello People;
I am so happy, I asked mommy to help me send a letter to Ellen.  I watch her on TV alot.  She is so funny,
she makes me laugh.  I dance when she dances.  She makes me laugh so much.  I send letter to her to help me to make money to help  I told mommy, do you think she will write me back?  Mommy says, I
do not see why not, if you are sincere and I want to help other kids like me, she would be crazy not to hear me.  Mommy says she is proud of me for wanting to do something to help other kids.  Doing nice things for others is a good thing.  I am going to hand write a list of ideas to earn money for research and education for pediatric stroke (  I want kids at school to learn more about kids with stroke.  Us Hemi kids are not weird, we are good kids we just need med's.  I play the same as they do.  I like Nintendo like other kids.  I ride my bike, I play with bubbles.  I jump rope.  I chase my cat.  I am a good kid.  I just have a hard time with learning, writing, remembering stuff.  I just need more help with stuff.  I am going to go right now
before it gets dark and go outside and play.  Bye Bye  

Sunday, September 18, 2011

Helpful Document regarding Toe Walking


I came across this interested document from J Romkes regarding Toe Walking; This answered alot of my questions that Kearstyn has experienced;


Laboratory for Gait Analysis Basel, University Children's Hospital (UKBB), Burgfelderstrasse 101, CH-4012 Basel, Switzerland.


This study compares lower extremity muscle activation during gait in patients with hemiplegic cerebral palsy (CP) with healthy subjects mimicking the patients. The purpose was to understand the differences between obligatory toe-walking as observed in hemiplegic CP gait and voluntary toe-walking. The results contribute to a better understanding by distinguishing between primary deviations in muscle activity as a direct consequence of the underlying neurological pathology of hemiplegic CP and secondary, compensatory deviations due to the biomechanics of toe-walking. Surface electromyographic (EMG), kinematic and kinetic data were compared between a group of 12 hemiplegic CP patients and a group of 10 healthy subjects walking normally and when mimicking hemiplegic gait. Integrated 3D gait analysis was performed with simultaneous EMG recordings of the medial gastrocnemius, tibialis anterior, rectus femoris, and semitendinosus muscles bilaterally. The EMG pattern of the toe-walking leg in the mimicking subjects was modified in gastrocnemius and tibialis anterior as compared with normal gait. This modified muscle activation pattern showed strong similarities to that of the patients and therefore can be regarded, at least in part, as activity required for toe-walking. A possible primary gait abnormality was observed in the rectus femoris where the patients showed a burst of EMG activity in mid-swing phase in contrast to the mimicking subjects who showed normal EMG during this phase.
[PubMed - indexed for MEDLINE]

Thursday, September 15, 2011

I took a Language test today, there were 5 questions and I got 100%.  Mommy was so happy for me!!!

Katie in my class graded my paper, I am so happy I got 100% 

Monday, September 12, 2011

I'm home from School

Today was very busy at school.  But yeah no homework.  Mom says I can work on my Blog for a little
while, but not very long since I am really tired.  I ate cheese nachos for lunch today and white milk.  My friends at school are, J. J and Devony, Anna, they are nice to me, we play together at recess.  We talk about girl toys like Barbies, Littlest Pet Shops and Hello Kitty.  We talk about my kitty, I tell them she is a pain in the butt and likes to run and chase me.  Her name is Tinkerbell, I sometimes call her Tinky, or Bubba's, or Ms Baby.  I like to play ball outside, I play kick ball with my friends, I kick it hard.  We also like to swing together.  Anna says she likes being my friend.  The nurse came to class and gave me my meds today, like she does everyday at school.  Well I got to go, I want to watch Nick Jr. until dinner time, then I eat, then I take a shower and brush my teeth, put my jammies on and its bedtime.  Maybe I can talk more tomorrow.  See ya :)

Cerebral Palsy and Other Helpful Info Links

Links By Subject

Adaptive Therapy Equipment
Abilitations specialized therapy tools/toys and adaptive equipment

Enablemart carries the latest assistive technology products and software

ADDitude Magazine Understanding the Symptoms, Diagnosis & Treatment

Ages and Stages Questionnaire
The Ages and Stages Questionnaires® (ASQ) Third Edition is a questionnaire designed to help parents check their child's development. Parents can use the results of the ASQ to help talk with pediatricians, teachers or other professionals if they have concerns about their child's development.

CDC Online source for credible information

CDC Take the developmental milestones quiz quiz

CDC Has information for doctors, healthcare providers, families. Look over the facts for any concerns you may have facts

National Center for Learning Disabilities provides essential information to parents, professionals and individuals with learning disabilities, promotes research and programs to foster effective learning and advocates for policies to protect and strengthen educational rights and opportunities 
Karen Gaffney Foundation dedicated to championing the journey to full inclusion in families, schools, communities and the workplace for people with Down syndrome or other developmental disabilities House is an organization helping children and families by providing treatments, courses, and support to families and individuals affected by autism and related disabilities

Foley Vision Center Vision Therapy and Pediatric Eye Doctors

Lifetime Eye Care Vision Therapy and Pediatric Eye Doctors
Family Programs & Services

Foundation of Dentistry for the Handicapped donated dental services Special Solutions future care planning for families with special needs children

Disability Compass provides information on services, products, and special health care resources

Lose the Training Wheels is a program that uses unique adapted bikes allowing children to Lose the Training Wheels™ and ride conventional bicycles

Family Support/Consultation
Barbara Avila Consulting- RDI services, Autism and Social Behavioral supports

Diane Frost Wiscarson, P.C. - Legal support for families of children with special needs

Lana L. Traynor, LLC - Compassionate counsel to families and people with special needs

Occupational Therapy Resources
Handwriting Without Tears® The goal of HWT is to make legible and fluent handwriting an easy and automatic skill for all students

Vital Links (Therapeutic Listening®) is an evidence-backed protocol that combines a sound-based intervention with sensory integrative activities to create a comprehensive program that is effective for diverse populations with sensory challenges

Physical Therapy Resources
Hemi-Kids is an email support group where parents of children who have hemiplegia or hemiplegic cerebral palsy share support and information

Wheelchair Works provides specialty rehabilitation equipment esp. wheelchairs

United Seating & Mobility provides seating and mobility solutions for people with disabilities

Rifton Adaptive rehab equipment for children with differing abilities

Sammons Preston Rehabilitation equipment and supplies

A Step Forward Scoliosis bracing, lower extremity orthotics and foot orthotics

Social Skills Resources
Michelle Garcia Winner, SLP, CCC specializes in developing further understanding and educational strategies for helping persons with social thinking/social communicative challenges

All Kinds of Minds non-profit Institute helps students who struggle with learning measurably improve their success in school and life by providing programs that integrate educational, scientific, and clinical expertise

Speech Therapy Resources
Talk Tools products designed to encourage clients to explore shape and texture, increase sensory awareness, and build muscle tone/strength in the jaw, lips, checks, and tongue

Speech Language Pathology Web sites provide pointers to finding information in the field of Speech Language Pathology

ASHA (American Speech-Language-Hearing Association) is the professional, scientific, and credentialing association for more than 127,000 members and affiliates who are audiologists, speech-language pathologists, and speech, language, and hearing scientists

Visual Supports
Mayer-Johnson enhances learning and human expression for individuals with special needs through symbol-based products, training and services

Sandbox Learning can provide children with customized tools that connect them to their goals, their community, and the world around them

Do2Learn provides tools and solutions based on scientific research and clinical experience to help those with special learning and treatment needs
Cerebral Palsy
United Cerebral Palsy (UCP) is the leading source of information on cerebral palsy and is a pivotal advocate for the rights of persons with any disability

Hemi-Kids is an email support group where parents of children who have hemiplegia or hemiplegic cerebral palsy share support and information


Mom met with the Neurologist and he told mom more information and expectations.  He told mom that I was improving miracously.  He said "I am not sure what you're doing or what you're telling her, but keep doing it, it appears to be working"... Mom thanked God for his love and mercy and could not wait to get back to me and spend me time with me.  The same day before mom was ready to go home for the night the nurse came by.  Mom says she sat next to mom and gave her words of incouragement and talked to mom about faith and hope.  Mom says the nurse told her that all the Dr.'s and Nurses all say that I am so beautiful and will grow up to be an Amazing Child.  The nurse said, "She is a Strong one".  I am and I come by it naturally is what Grandma says, all the time.  The next day when mom came for her visit, there was more improvement.  The Dr. came to see mommy and he told mommy that I continue to improve and this night under very close supervision and monitoring they were going to see how I would do with out the Oxygen line.  The Dr. told mommy that if I could breath on my own without it through the night and the next day until mommy came to visit with good results, I might get to go home.  Mommy says she cried with excitement.  ***Got to go for right now, will write more soon***

Sunday, September 11, 2011

More Helpful Links of Information & Families in TX

NEW Kids Have Strokes Blog

4MyChild - 1-800-4MYCHILD

Roger A. Webb, Executive Director
Texas Planning Council for DD

Gene Lenz, Senior Director
Special Education
Texas Education Agency

Cerebral Palsy
Bill Knudsen, President & Chief Executive Officer
United Cerebral Palsy of Texas
7301 Burnet Road, Suite 102-PMB 565
Austin, TX 78757
(512) 468-7645; (800) 999-1898

Donna Stahlhut, Executive Director
Epilepsy Foundation of Southeast Texas
2650 Fountain View, Suite 316
Houston, TX 77057
(713) 789-6295; (888) 548-9716 (in TX)

Epilepsy Foundation of Greater North Texas
2906 Swiss Avenue
Dallas, TX 75204
(214) 823-8809; (800) 447-7778 (in TX only)

Learning Disabilities
Ann Robinson, Coordinator
Learning Disabilities Association of TX
1011 West 3lst Street
Austin, TX 78705
(512) 458-8234; (800) 604-7500 (TX only)

Rebecca Rabinowitz, President
Easter Seals Greater Dallas, TX
4443 N. Josey Lane
Carrollton, TX 75010
(972) 394-8900; (800) 580-4718

Texas Advocates Supporting Kids with Disabilities (TASK)
P.O. Box 162685
Austin, TX 78716
(512) 310-2102 (V or Fax)


Part II: True Love Story

After quite some time, mom started to become anxious and did not want to stay in bed in rest.  She proceeded to ring the buzzer to the nurses station.  Her nurse came in and asked what she could do to help.  Mom states I need to know what is going on.  I want to see me daughter.  The nurse started to explain to mom " you need to stay in bed and rest, you went through a tramatic experience, according to your chart you experienced a large tear requiring 30 stitches and Dr. has notes saying you must rest.  Mom was not cooperative and insisted on seeing her daughter.  Nurse says, " I'll go speak with the Dr. and I'll be right back".  Thirty minutes or so passed and nurse returns with Wheelchair.  Mom was taken down to NICU where she would stay for many many hours.   Hours flew by like minutes with all the communication with Dr.'s, Specialist and Nurses and Attending Staff.  Mom was taken to bedside of daughter where she broke down and almost fell to the floor.  If it were not for the Nurse standing behind her, mom would have hit the floor.  The tears flowing down her face as she looked at her little baby girl, bundled in a blanket, at the foot of her bed a little pink sign saying "Kearstyn -----, 8 lbs 15.4oz born August 1, 20--, 21 inches.  The nurses created beautiful little picture drawings and put them around her bedside, notes of love and prayers.  As mom got closer with help of Nurses guiding her to stand she peered down as close as she could get.  Not able to pick her up because of the many many wires and tubes.  She had wires on her little head, on her little tiny hand and wires to her belly button.  Another wire attached to her little foot.  Mom asked the nurse why?  She was then told what had happened in a brief version and told what the different wires were and what they were doing.  The wires in tummy are to feed her.  Wires to her nose is Oxygen.  Wire to her foot is where we took her blood and we are monitoring her.  Nurse states "you can touch her mom, she knows your touch".  Mom softly and quietly rubbed little Kearstyn hand and told her "Mommy's here baby", "You're going to be ok" with tears running down her face and having difficulty holding back the shaking in her voice.  The nurses left mom alone with little Kearstyn for about 5 minutes maybe a little longer with mom standing next to her little bed and the bubble over her little body.  Her little hands were clinched tightly and her eyes clothes, but with a peaceful sense on her little face.  Nurses came back with a rocking chair and stated that we need to discuss with you on breast feeding and then the Nurologist is going to come by and speak with you.  After time of instruction on breast feeding into bottles for the nurses to feed Kearstyn.  The Nurologist came by and asked mom to come with him.  Mom was told about the 3 strokes and shown the MRI / Xray, and told what she was seeing, the gray areas and what they were.  Definition was told "Right Frontal Infart", nothing more than that was told, no expectation only that Kearstyn would need to stay in the hospital for undetermined amount of time right now.  Mom remained in the hospital for 3 days, spending the majority of her time at bedside.  Family and Friends were notified and the Prayers and Prayer Groups started.  Mom comes from a very Faith driven family and knows the power of prayer.  She began talking to the Lord and asking him for strength, wisdom, and guidance.  Mom prayed over her little Kearstyn and dedicated her to him and asked for Angels of protection around her and her bed.   Mom prayed for peace for herself and she prayed that the Lord would send help to her.  Mom stayed by her bed and as the days went by little Kearstyn's condition slowly began to shows glimmers of improvement and hope.  Mom was able to sit next to her bed in the rocking chair and the nurses would put little Kearstyn in her arms for mom to rock her and talk to her, while still attached to the many wires.  Mom was able to start feeding her with a bottle and breast milk and little Kearstyn started fixing her eyes on Mommy.  Mommy would sing to her, talk to her and tell her about all the wonderful things she would do in her life.  Mommy would tell her how beautiful and smart she is.  Mommy would tell her about all the family that can't wait to meet her.  Kearstyn over the days would start gaining little bits of weight and would start smiling when she would see mommy for mommy's visits.  Mommy stayed at her bedside and occassionally was only gone for a few hours at a time.  Mommy would sleep in the rocking chair next to her bed and kept her finger touching Kearstyn's hand, every moment she was able to.  Several more days went by and the Dr. came to talk with Mommy.  He said "Keartstyn is having difficulty doing BM", we really need her to poop.  She must stay here until we are certain she is able to go home with some ability to be away from the hospital.  She was still on Oxygen, but according to the Dr.'s she could go home on Oxygen but the BM issue was a concern.  Mommy, went back to bedside, and cuddling and bonding with Kearstyn would have conversation with Kearstyn.  Kearstyn rocking in the chair and mommy telling her " ok Kearstyn, Mommy needs you to poop, it's really important that you do this, so you can get out of here and go home".  Mommy prayed a long prayer asking the Lord to help and heal her little Kearstyn.  The next day when Mommy came by for visit she was approached by Nurse with smile on her face, prior to mom getting to bedside.  Nurse said , "We have good news today". "Kearstyn Pooped!!!" in quite a excited voice, her tone elevated enough for the other nurses attending the other babies to turn their heads and look and smile.  The nurse stated, "The Dr. wants to meet with you and discuss expectations".  Mommy was SO excited the tears just kept flowing and flowing and her face felt as though it was on fire from the salt of the tears.  Wiping away the constant flow of tears and swollen eyes she could not stop from smiling and thanking God for this wonderful miracle.  Mom went and spoke with Dr. Nurologist regarding what had happened and what was the next step.  *****I'll be right back with more Shortly**** 9/11/2011 4:15pm